THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC (MA)
Registration and award facts
SAM.gov registration as of
Net obligations recorded since FY2019 under this UEI: $1,464,209 across 1 award or order with positive net obligations.
- Net obligations since FY2019
- $1.46M
- $1,464,209under this UEI
- FY2026 obligations
- $0†
- Provisional
- Awards and orders
- 1
- with positive net obligations
- Latest action
- Jan 5, 2024
- SAM.gov registration
- Inactive
- Registration expiration date Sep 25, 2026
Registration
- UEI
- PCPAHHLS8VB6
- CAGE code
- 062L2
- Entity structure
- Corporate Entity (Tax Exempt)
- Business start date
- May 1, 1983 (43 years)
- Location
- Quincy, MA
- State of incorporation
- New York
- Purpose of registration
- All Awards
- Website
- rarediseases.org
SBA certifications
No certification in the SBA profile data.
NAICS codes
Federal contract obligations
Net obligations recorded under this UEI since FY2019. Top lists show the largest five by share of this vendor's net obligations; the shares do not sum to 100%.
Net obligations by fiscal year of action
- FY2022: $170,459
- FY2019: $1,293,750
Total across 2 fiscal years: $1,464,209
Top awarding agencies
- Department of Health and Human Services$1,464,209, 100%
Top awarding sub-agencies
- Food and Drug Administration$1,464,209, 100%
Top NAICS by obligations
- 813212Voluntary health organizations$1,464,209, 100%
Top product and service codes by obligations
- AN41R&d- medical: health services (basic research)$1,464,209, 100%
† FY2026 obligations (provisional; DoD awards signed after Jul 22, 2026 are not yet public).
Latest awards and orders
- 75F40119C10091Definitive contractDepartment of Health and Human ServicesFood and Drug AdministrationLatest action
Other contractors in Massachusetts with primary NAICS 813319
- Brightwood Development CorporationSpringfield, MA
- Resilient Coders, Inc.Cambridge, MA
- Golden Hands Clinic LLCShrewsbury, MA
- Healing Abuse Working for Change, Inc.Salem, MA
- Massachusetts Housing and Shelter Alliance, Inc.Boston, MA
- Children's Advocacy Center of Suffolk County, Inc.Boston, MA
Source: SAM.gov entity registration and FPDS contract actions recorded under UEI PCPAHHLS8VB6. GovChime does not check exclusions.
Key Performance Statistics
View obligations by year, agencies and performance history
Capabilities
NAICS Codes
See all industry codes with contract counts
Product/Service Codes
As of . Source: SAM.gov Goods & Services.
No PSC codes reported
Certifications
Business Types
Contracts
Explore federal contract awards with detailed transaction history
Contact Info
As of . Source: SAM.gov Points of Contact.
SAM.gov registration for THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC lists a physical address and a separate mailing address, along with 5 verified points of contact. Past Performance contacts are the recommended outreach channel for due-diligence references; Government Business contacts handle procurement-facing correspondence.
Source: SAM.gov entity registration. Contacts displaying numeric or placeholder names have been filtered (defense-in-depth).
Physical Address
1900 Crown Colony Dr Ste 310
Quincy, MA, 02169
USA
Mailing Address
7 Kenosia Ave
Danbury, CT, 06810
USA
Government Business Contact
Lori MacNeill
Controller
1900 Crown Colony Drive
Quincy, MA, 02169
USA
Electronic Business Contact
Alexa Moore
VP of Development
1900 Crown Colony Drive
Suite 310
Quincy, MA, 02169
USA
Past Performance Contact
Pamela Gavin
CEO
1900 Crown Colony Dr., Suite 310
Quincy, MA, 02169
USA
Government Business Alternate Contact
Pamela Gavin
CEO
1900 Crown Colony Dr., Suite 310
Quincy, MA, 02169
USA
Electronic Business Alternate Contact
Pamela Gavin
CEO
1900 Crown Colony Dr Suite 310
Quincy, MA, 02169
USA
Additional Details
As of . Source: SAM.gov Entity Registration.
THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC has no active federal suspension or debarment on record in SAM.gov. Current SAM.gov registration expires September 25, 2026.
Source: SAM.gov entity registration (FAR responses, registration status). Always verify active exclusions against the authoritative record on SAM.gov before contract award.
Compliance & Risk Assessment
Source: SAM.gov FAR responsesSuspension/Debarment Status
SAM.gov registration reports no active exclusion
Public Display
Entity information is publicly displayed
Disaster Relief Registry
Not registered for disaster relief
EDI
Not declared in SAM.gov
Business Structure
Source: SAM.govRegistration Details
Source: SAM.govDate Founded
Initial Registration
Last Update
Registration Activation
Registration Expiration
Fiscal Year End
State of Incorporation
Country of Incorporation
Congressional District
Entity Website